Author Archives: kidneystories2013

About kidneystories2013

My name is Jim Myers. I have a page on FB I call Kidney Stories. I would like to post your story on my page. It's new, but I have close to 2000 friends on my regular page (James Myers). I would love to share your story. I just opened a new Twitter account (Kidney Stories) and my regular account I have close to 1000 followers. My belief is that the best way to help myself is to help others. I am on the transplant list at IU. Like you I need a kidney. I want to raise awareness. May I share your story? My page link here: https://www.facebook.com/KidneyStories?ref=hl

Making Capitol Hill the Kidney Capital!

via Making Capitol Hill the Kidney Capital!

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MORE THAN A CONQUEROR LEGACY A BOOK BY BILL HAHN REVIEWED BY JAMES MYERS

resizeHahn Per.jpgMORE THAN A CONQUEROR LEGACY

A BOOK BY BILL HAHN

REVIEWED BY JAMES Bill Hahn Heart your KIdneyWill Surf.jpgPress ConferenceCocoa-Walk-Poster (7).jpg

Available at Amazon.com: https://www.amazon.com/dp/1546992391

ISBN-13: 978-1546992394

ISBN-10: 1546992391

I recently had the great pleasure of reading a book by my good friend and colleague, Bill Hahn. Spiritual, emotional, personal, revealing, this is a good read, even if you are not interested in kidney/organ donation. This book is about one man’s journey from life-altering loss, to near death, to rebirth and making the journey a blessing to others. In his Forward to the book, Congressman Posey’s message says it best: Despite all odds that Hahn encounters, Bill is a tireless advocate for organ donation, and just from his tone, you realize that the Surfpro is a guy that get things done; a bottom line overachiever.

Bill takes great care in telling us his story. This book with its spiritual confessions, videos, poem and even music tells the story in detailed, heartfelt honesty and precision. This is a story about a professional surfer, fit, healthy, competitive, who suffers from kidney failure and subsequent loss. Bill’s pro surfing career was cut short by diabetes. He has been a diabetes warrior for the last 26 years.

During that time period, Bill that he has overcome much in his journey; total blindness, comas, seizures, heart attacks and cancer.

It is in the Christian way that he responds to the drastic changes in his life that makes this book special. Imagine one day your ripping up waves in Florida, and 26 years later you’re in the hospital getting a fistula installed and placed on dialysis due to diabetes followed quickly by End Stage Renal Disease.

Time passes, once, twice he is called for a new kidney, only to be turned away. But the third time, Bill gets THE CALL!

In Bill’s own words,

“My first CALL I said NO. The reality that some had passed hit me as I needed both a kidney and pancreas transplant. By the second CALL I realized God has a plan for each of us so I said YES but the organs had been compromised and my gift of life was put on hold. Call number three was the miracale. GODS PLAN.”

His New Year’s Miracle came at the age of 52, and he became a Kidney/Pancreas Warrior, advocating in God’s name and his donors name. He is reborn, transplanted, given back to us. 9 years and counting, Bill has been given new life. He calls this his New Year’s Eve Miracle, a gift from God. Prayers answered, Bill has become a world class Kidney/Organ Donation Advocate. He has done much to honor his New Gift of Life, Including:

• The Annual Footprints in the Sand Kidney Walk for the National Kidney Foundation of Florida;

• The Starfish Donor Mom Tribute Dinner;

• Helping Dialysis Patients Understand They are not Alone;

• Inspiration for Those That Have Just Received a Donated Organ;

• Establishing May 13th as Florida Living Donor Day;

• Building Sand Castles of Hope with pediatric kids and families;

• Writing the Song, Surfer’s Story, Now in the Library of Congress;

• Bill’s Mother and Father are responsible for the Dedication of the Hahn House Museum in Wisconsin, Bill continues to protect that legacy;

• Bill’s Mom and Dad are responsible for the Dedication of the Great Sauk State Trial and having it placed on the National Registry of Historic places, Bill continues to protect that legacy

• Bill is responsible for the creation of Life River Walk to be completed in 2018, that is adjacent to the Hahn House.

Bill has dedicated his life to others. This book, much like the man, is an amazing testament to his determination, hard work and faith. It is sensitive and inciteful. Just check out all the You Tube videos that go with each and every chapter of this book. Prayers, music, interviews, poems, and live events, showing the heart and soul of this Christian Kidney/Organ Donation Advocate. The strength, selflessness and sensitivity to the needs of others are the essence of Bill Hahn.

Bill teaches us,

“Godspeed to all those waiting. Gods grace to all who receive the Call.”

This book is a vivid reflection of this great man.

2017 in Review: NKF’s Advocacy Accomplishments

Advocacy in Action

By Troy Zimmerman, Vice President of Government Relations

2017 was a fantastic year for kidney patients as progress was made towards increasing awareness of chronic kidney disease (CKD) and introducing key legislative priorities.  The kidney patient community banded together to protect patients at the state and federal level.  Much of this success by National Kidney Foundation (NKF) was due to the work done by advocates like you, working on behalf of kidney patients.  Thank you for all your efforts.

Our accomplishments include the following:

  1. capitol building Capitol Hill

    On March 1st, 2017, the Living Donor Protection Act (H.R. 1270) was introduced to protect living organ donors and remove barriers to donation by prohibiting insurance companies from denying or limiting life, disability and long-term care insurance to living donors, and from charging higher premiums.  It will also help to protect the jobs of living donors while they recover from organ donation. …

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Making Inroads in Congress

Advocacy in Action

By Dr. Michael Choi, MD and National Kidney Foundation President

Recently, I had the privilege to represent the National Kidney Foundation in 11 meetings in the U.S. House of Representatives, eight of which were with the Member of Congress and the other three with their health staff member.  The purpose was to build support for legislation (H.R. 3867) spearheaded by the National Kidney Foundation to improve the early detection and treatment of chronic kidney disease (CKD). The highlight of the day was a full one-hour discussion with Rep. Markwayne Mullin (R-OK), who introduced H.R. 3867 at NKF’s request, about the impact of CKD and the importance of early detection. My meetings also provided an opportunity to talk about the broad impact of various NKF programs.

capitol-building-at-district-of-columbia

Every Representative I met is a member of a House health committee and/or a physician.  It is encouraging to know so many Members of Congress…

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