World Kidney Day Bring Kidney Disease Home to All of America

Advocacy in Action

CKD - Robin Kelly 3.8.17 A World Kidney Day Congressional Record Entry

On March 9th, America celebrated World Kidney Day.  This awareness raising event resulted in a day of attention on kidney disease across major cities and in all 50 states.

Multiple state legislatures and city governments

Donate Life KS House Kansas Advocates on the State Capitol’s Floor

issued proclamations about the importance of chronic kidney disease education and CKD’s impact on the 26 million Americans who have it.   Some legislatures recognized NKF advocates for their extraordinary work.  Others brought kidney disease patients onto their floor to celebrate World Kidney Day.  In fact, several states – including Texas, Kansas, and South Carolina – hosted advocacy days in their state capitols to further emphasize the impact of CKD to their legislators and staff.

Light Pylons at LAX LAX Pylons

Buildings, bridges, airports, ferris wheels, and natural landmarks turned orange, the national color recognizing kidney health, and hung

Sioux Falls Sioux Falls

banners in recognition…

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Becoming a kidney donor was not easy, but in the end, it was all worth it

Kidney Walk

Calve Milligan at the 2016 Kidney Walk

For Calve Milligan, a LogistiCare employee, watching his mother endure long hours in the dialysis chair was difficult.  “My mother suffered from diabetes most of her adult life. In 2010, her doctor notified her that her kidneys were failing. My brothers and I were incredibly saddened by the news, because kidney failure would mean she would have to receive dialysis treatment at least 3 days a week for 4 hours a day, which can be very a grueling process. Our worst fears had come to life when in August of 2012 my mother’s kidneys completely failed and she had to begin dialysis treatments.

Although I knew my mother would need a kidney donation to no longer need dialysis, I was not mentally prepared to consider myself. We continued to wait for a donor, as no matches came about. I knew my mother secretly…

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NKF kickoffs Kidney Innovation Summit hosted by the U.S. Department of Veterans Affairs

Advocacy in Action

By Michael J. Choi, MD, FNKF – NKF President, Clinical Director of Nephrology, Johns Hopkins School of Medicine

The best way to predict the future is to create it. – Abraham Lincoln.

With more than 26 million adults in the United States impacted by kidney disease and over 675,000 people with irreversible kidney failure, or end-stage renal disease (ESRD), who require dialysis or a kidney transplant to survive, the need for innovation that improves diagnosis, management, and treatment is imperative.

Innovation in kidney disease requires the creation of new technologies, software

Kidney Innovation Summit Kidney Innovation Summit – Washington, DC February 9-10, 2017

platforms, care delivery and coordination processes as well as improved education for patients, caregivers, and health providers. Innovation should aim to solve the most challenging problems of today and the future to improve the lives of those impacted by the disease.

NKF is the historic pioneer of scientific research and…

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The 4th Annual Kidney Patient Summit

Advocacy in Action

hea04888Nearly 150 advocates from six kidney organizations will converge on Capitol Hill, March 6-7, to meet personally with lawmakers and put a human face on kidney disease during the 4th Annual Kidney Patient Summit, organized and led by the National Kidney Foundation (NKF). This largest event to date brings together, in a unified voice, NKF’s Kidney Advocacy Committee members and advocates from Alport Syndrome Foundation, Polycystic Kidney Disease Foundation, NephCure Kidney International, Home Dialyzors United and American Association of Kidney Patients. 

The attendees will share their stories and urge Members of Congress to co-sponsor the Living Donor Protection Act, which would prohibit discrimination in life, disability or long-term care insurance for living organ donors and protect jobs by adding living donation to the Family Medical Leave Act; support a pilot program which seeks to improve early detection, care and outcomes for people with chronic kidney disease (CKD); and support…

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The 4th Annual Kidney Patient Summit

The 4th Annual Kidney Patient SummitPosted on March 5, 2017 by nkf _advocacyhea04888Nearly 150 advocates from six kidney organizations will converge on Capitol Hill, March 6-7, to meet personally with lawmakers and put a human face on kidney disease during the 4th Annual Kidney Patient Summit, organized and led by the National Kidney Foundation (NKF). This largest event to date brings together, in a unified voice, NKF’s Kidney Advocacy Committee members and advocates from Alport Syndrome Foundation, Polycystic Kidney Disease Foundation, NephCure Kidney International, Home Dialyzors United and American Association of Kidney Patients. The attendees will share their stories and urge Members of Congress to co-sponsor the Living Donor Protection Act, which would prohibit discrimination in life, disability or long-term care insurance for living organ donors and protect jobs by adding living donation to the Family Medical Leave Act; support a pilot program which seeks to improve early detection, care and outcomes for people with chronic kidney disease (CKD); and support funding for CKD programs run by the Centers for Disease Control and Prevention, National Institute of Diabetes and Digestive and Kidney Diseases, and Health Resources and Services Administration.At the Summit, individuals who have kidney disease, dialysis patients, living donors, family members and caregivers will be united by the affirmation and hashtag

Source: The 4th Annual Kidney Patient Summit